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Four NHS bodies impose two-year minimum wait for ADHD and autism assessments

Four NHS integrated care boards (ICBs) in England are requiring people with suspected ADHD and autism to wait at least two years for assessment due to high demand and cost.

  • Four NHS integrated care boards have implemented a minimum two-year wait for ADHD and autism assessments.
  • This approach is due to surging demand for diagnoses and the inability to afford the cost of assessments.
  • Patient groups have criticised these delays, with ADHD UK calling minimum waits "heartless and dangerous".

Four NHS integrated care boards (ICBs) in England are now requiring people with suspected attention deficit hyperactivity disorder (ADHD) and autism to wait a minimum of two years before they can be assessed. This measure has been adopted because the ICBs are struggling to meet the surging demand for neurodiversity diagnoses and cannot afford the associated costs.

In total, 15 ICBs, covering 19 million people, have introduced various methods of rationing assessments for ADHD and autism. These include limiting the number of assessments paid for annually and using “clinical prioritisation” criteria to restrict assessments to those with the most serious signs.

Patient groups have voiced concerns, with the charity ADHD UK describing minimum waits as “heartless and dangerous”. They warn that such delays may negatively impact children's school success, deny individuals necessary support, and increase the risk of suicide.

West Yorkshire NHS ICB has implemented a two-year minimum waiting time for assessments with independent providers, citing a rise in costs from £7m in 2023-24 to £21m last year. Other ICBs, including North East and North Cumbria, Somerset, Devon, and Kent and Medway, have also introduced minimum waits or restricted assessments based on priority criteria.

Why this matters: The delays in assessments may prevent individuals from receiving timely diagnoses and accessing essential support for managing their lives, potentially impacting education and increasing health risks.

What this means for you: If you are in an area covered by one of the affected NHS integrated care boards and suspect you or your child has ADHD or autism, you may face a minimum two-year wait for an assessment.

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