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MND patients to receive faster access to care and support

Patients with motor neurone disease (MND) will gain faster access to care and support, as announced by Health and Social Care Secretary Yvette Cooper.

  • A new fast-track care pathway will be developed, drawing on principles from the Rob Burrow Centre.
  • The government is taking action to address delays and fragmentation in support for people with MND.
  • Immediate steps for local authorities include fast-tracking access to care and waiving the Disabled Facilities Grant means test for MND patients.

Patients living with motor neurone disease (MND) are set to receive faster access to care and support, Health and Social Care Secretary Yvette Cooper announced today, 5 August 2026. The announcement was made during a visit to the Rob Burrow Centre for Motor Neurone Disease in Leeds.

The government is launching action to tackle existing delays and fragmentation in support for individuals with MND. This initiative forms part of the initial phase of social care system reforms and aims to advance Andy Burnham’s vision for a national care service.

A new fast-track care pathway will be developed in collaboration with the Motor Neurone Disease Association, patients, carers, and partners across health, social care, and housing. This pathway will build on best practices, such as those demonstrated by the Rob Burrow Centre, to promote proactive care and improve coordination between services.

In March 2026, Baroness Casey highlighted the urgent need for faster access to care for people with MND. In response, the government has already instructed local authorities to implement immediate measures, including fast-tracking access to care and support, ensuring integrated health and social care services, and waiving the Disabled Facilities Grant means test for MND patients.

Why this matters: The changes aim to reduce lengthy waits and the complexity of navigating multiple services for MND patients and their families, at a time when timely support is crucial.

What this means for you: If you or a family member live with MND, you may experience faster access to care and support, and local authorities have been directed to take immediate steps to improve services.

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