Paula McGowan, whose 18-year-old son Oliver died in 2016, has stated she is "deeply concerned and hurt" after being informed that his medical records may have been accessed inappropriately by NHS staff.
She was told that at least five staff members at Bristol Foundation NHS Trust may have viewed his records without permission as recently as this year. Three nursing staff are currently under formal investigation, while a doctor who no longer works for the trust has self-referred to the General Medical Council. Another staff member's case is being reviewed separately.
The trust has apologised for any stress and anxiety caused and has voluntarily referred itself to the Information Commissioner's Office. It is undertaking a "thorough investigation" into the matter.
Oliver, who had a mild learning disability and epilepsy, died at Southmead Hospital in Bristol. His mother was informed that 38 people had accessed his data since his death, with most access being appropriate and linked to complaints, legal proceedings, and the coroner's inquest.
However, initial inquiries found no evidence of a legitimate reason for three nursing staff, not involved in his care, to view his records. The trust is also examining 13 other cases involving former staff to determine if their access was appropriate.